Finish the Sentence Friday hosts:
Kristi Finding Ninee
Trana Sand in My Toes
“I never had the courage to…“
well, the darn list is too long.
I happily admit I’m scared of a bunch of things…
I never had the courage to (and never want to) go sky diving or jump off a cliff. I hear it’s a great adrenaline rush or thrill. That’s fine, you keep doing it and I’ll stay safely on the ground.
I never had the courage to (and never want to) touch a spider. I heard that if you conquer your fears they will be gone. My answer is a big, fat NOPE!
I never had the courage to (and never want to) go on a roller coaster. I’m too scared of heights, being thrown around, and being upside down. I LOVE the fact that my son is not scared of heights or roller coasters and will gladly go on them a hundred times…good for him…and hubby who goes with him. I’ll share in their joy from the ground.
I DID have the courage to fight for my son. It’s been a long battle since before he was born…
With all the fertility treatments, injections, hormones just to get my body to work and hold onto, nourish, and carry a baby.
With knowing there was something wrong with my pregnancy, even though everyone and their mother told me…”It was fine.”, “This is what I wanted.”, and “Man up.”
With being diagnosed too late with preeclampsia (with a terrible doctor and should have switched to another doctor) and having my son in the NICU. I grieved for the birth I would never have and the loss at not being able to see and hold my son when I wanted. I often felt like a criminal being buzzed in just to hold my little man.
With trying to breast feed my little man and him not latching on. In the midst of trying for two months, I got numerous infections and somehow had to let go of the guilt, heal, and become a healthy mom to care for my son.
With knowing he DID NOT have allergies and need to go on Allegra at almost two years old, but rather he was allergic to dairy milk and taking him off of it made a huge difference in all our lives. If I had known then what I know now, I would have skipped the cow’s milk and let him drink coconut, rice, and almond milk…so much safer and healthier.
With knowing he had speech delays and fighting to get services, which he eventually received and what a difference it made.
With having years of PPT meetings and not getting help for his sensory issues. Since he was not yet in the school system they didn’t seem to care or want to help. Now he is in kindergarten and officially in the school system. His kindergarten teacher was able to provide enough evidence that he needed more help than she can give him. We had our meeting and low and behind he is getting the service he needs. While he does not qualify for an IEP since he does not have a learning disability, he does qualify for a 504. What is a 504? It means that he has an impairment that requires accommodations for him to be successful in school. His accommodations will include a variety of efforts and manipulatives as well as occupational therapy twice a week for visual processing delays, fine motor delays, and sensory delays.
I wanted to jump up hug each member of the team, I just about cried from joy and relief. Finally my son is getting the support he needs. The 504 will last a year, so when he returns to school in September as a first grader, his OT services will continue. Next December we will all meet again to discuss his current progress, goals, achievements, and delays.
As a reading specialist I often worry, since I work with students who have such learning disabilities, that he has dyslexia or ADD. I know he’s only five and it’s too early to identify this, but it plays a role in my worries. Maybe one day he will qualify for an IEP or perhaps the OT can help my son overcome his delays and he will no longer need service, consultations, and manipulative