Finding Courage for my Dinosaur

 

FTSF collage courage

Finish the Sentence Friday hosts:

Kristi Finding Ninee
Trana Sand in My Toes
Viday VidaySuray

~**~**~**~**~**~**~**~**~**~**~**~**~**~**~

“I never had the courage to

well, the darn list is too long.

I happily admit I’m scared of a bunch of things…

I never had the courage to (and never want to) go sky diving or jump off a cliff. I hear it’s a great adrenaline rush or thrill. That’s fine, you keep doing it and I’ll stay safely on the ground.

I never had the courage to (and never want to) touch a spider. I heard that if you conquer your fears they will be gone. My answer is a big, fat NOPE!

I never had the courage to (and never want to) go on a roller coaster. I’m too scared of heights, being thrown around, and being upside down. I LOVE the fact that my son is not scared of heights or roller coasters and will gladly go on them a hundred times…good for him…and hubby who goes with him. I’ll share in their joy from the ground.

~*~*~*~*~*~*~*~*~*~*~ 

I DID have the courage to fight for my son. It’s been a long battle since before he was born…

With all the fertility treatments, injections, hormones just to get my body to work and hold onto, nourish, and carry a baby.

With knowing there was something wrong with my pregnancy, even though everyone and their mother told me…”It was fine.”, “This is what I wanted.”, and “Man up.”

ump

With being diagnosed too late with preeclampsia (with a terrible doctor and should have switched to another doctor) and having my son in the NICU. I grieved for the birth I would never have and the loss at not being able to see and hold my son when I wanted. I often felt like a criminal being buzzed in just to hold my little man.

nicu

With trying to breast feed my little man and him not latching on. In the midst of trying for two months, I got numerous infections and somehow had to let go of the guilt, heal, and become a healthy mom to care for my son.

With knowing he DID NOT have allergies and need to go on Allegra at almost two years old, but rather he was allergic to dairy milk and taking him off of it made a huge difference in all our lives. If I had known then what I know now, I would have skipped the cow’s milk and let him drink coconut, rice, and almond milk…so much safer and healthier.

With knowing he had speech delays and fighting to get services, which he eventually received and what a difference it made.

mags

With having years of PPT meetings and not getting help for his sensory issues. Since he was not yet in the school system they didn’t seem to care or want to help. Now he is in kindergarten and officially in the school system. His kindergarten teacher was able to provide enough evidence that he needed more help than she can give him. We had our meeting and low and behind he is getting the service he needs. While he does not qualify for an IEP since he does not have a learning disability, he does qualify for a 504. What is a 504? It means that he has an impairment that requires accommodations for him to be successful in school. His accommodations will include a variety of efforts and manipulatives as well as occupational therapy twice a week for visual processing delays, fine motor delays, and sensory delays.

smile

I wanted to jump up hug each member of the team, I just about cried from joy and relief. Finally my son is getting the support he needs. The 504 will last a year, so when he returns to school in September as a first grader, his OT services will continue. Next December we will all meet again to discuss his current progress, goals, achievements, and delays.

As a reading specialist I often worry, since I work with students who have such learning disabilities, that he has dyslexia or ADD. I know he’s only five and it’s too early to identify this, but it plays a role in my worries. Maybe one day he will qualify for an IEP or perhaps the OT can help my son overcome his delays and he will no longer need service, consultations, and manipulative

What do your don’t you have the courage to do? What have you overcome or are trying to overcome?


Comments

Finding Courage for my Dinosaur — 14 Comments

  1. So glad your little guy is getting the help he needs. Parenting is hard, but you know when there’s something wrong and I wish we would be more accommodating to seeing that before school starts.

    I’m trying to get over myself and really try a hand at making blogging a career from home rather than a hobby that gets a few paychecks.

  2. I will NEVER touch a spider (on purpose anyway). Shudder. I’m so so glad that Dino is now getting the services he needs! I’m surprised they didn’t put him on an IEP because here, an IEP is for anybody who needs an individual education plan, and with OT, he is getting that. It’s so weird how much it varies from state to state. That he’s getting help is what’s important though so that’s awesome! Good for you mama!!! And thanks for linking up with FTSF!!

  3. Hi Karen: I understand your fears but I also see how much you’ve accomplished for your son. It seems that you’ve achieved a balance between your fears and your hopes that enables you to seek out that which you want to to do — and get it done! Congrats!

  4. I can’t imagine touching a spider on purpose! The worst is when you find there’s one in the car while you’re driving. FREAKY! Good for you for being such an advocate for your son. Early intervention is so important with all impairments/disabilities. We often think “he’ll grow out of it”, but corrective action is so much harder if you wait to take it.

  5. I will never go on a rollercoaster, totally with you, safe on the ground, Karen :).
    You are a courageous, wonderful mom to your little Dino. My son, 5th grade, has had an IEP for two years. He has ADHD and dysgraphia, which we only officially diagnosed when he was 9. Just now I received the most wonderful email from the resource specialist at his school which makes me feel the dark and twisty road we are on with him is a little brighter and not so twisty.

Would love to read your thoughts