Finally On The Right Track


finally on the right track

After years of of meetings, aggravations, and fighting, AJ finally has the services he should have gotten years ago. He was denied speech services after he aged out of Birth to Three services. In Connecticut the school district then takes over at this point and assign one elementary school to handle these preschool meetings. At this meeting, I was told his speech issues would go away naturally. He was denied OT services numerous times when he was in daycare all through his third and fourth years. They claimed he did not qualify, but gave pages upon pages of activities and resources the daycare teachers could do to help AJ. The daycare was amazing they did all they could, but even they knew AJ needed extra support they could not provide. If he had all those recommendations and needs, why not just give him services? It’s simple really, he wasn’t in their school and wasn’t their issue so they didn’t have to deal with him. When he did start kindergarten he would be at another elementary school in the district so he would never be their problem. It made no difference that I was a special education teacher and reading specialist in NY, they didn’t want to give out resources and time to a kid that would never be their problem. They should all be ashamed of themselves.

Now that he’s in kindergarten that has all changed. I am truly happy with the school and how they have responded to my son’s needs.

First it started with AJ having a 504 plan and getting OT two times a week, then daily breaks and brushing have been added on to his plan. He’s getting speech and reading services to help him with his phonemic and phonological deficits, they will both use a multisensory program to improve his decoding and encoding. He is also going to meet with the school psychologist for a group social skills session once a week. His IEP will begin the rest of this year and continue for 2015-2016 school year. As of right now he is classified as learning disabled since they are not sure if his attention difficulties are due to his sensory issues or ADD. When we go for his annual doctors’ appointment, we can discuss all this with doctor. We will wait and see if the doctor wants to do an assessment for ADD or tell us to wait till September.

cheer

I am not crossing dyslexia off the table yet. AJ is very smart and I’m not just saying that because I’m his mother. He understands and expresses vocabulary above his grade level, he loves to read (what do you expect from a mom who is a reading specialist), can answer both literal and inferential comprehension questions, make predictions, describe characters, and summarize text, His deficits are in the areas of phonemic and phonological awareness. What is that you ask. Well HERE is a great explanation.

I know first hand what happens when students are not given the support they need. Students who are given services too late, struggle in the later years and will never catch up to where they are supposed to be academically.

This describes AJ now, he spends all his energy on trying to sound out and write letters, that his amazing stories are getting lost in the frustration. If this is happening now in kindergarten, what will happen when he’s in third and fourth grade and he still can’t properly read the words on the page or write down what he expressed aloud. Now with reading support focusing on a multisensory program, we will see if and how AJ improves.

AJ will also be getting summer services for the month of July, this will effect the time he spends at daycare summer camp. I know he will be upset about missing field trips on Thursdays, but he really needs support over the summer. I will try to get him back to daycare camp in time for swimming and horseback riding. It’s not his fault the previous school did not do their job and give him the services he needed; but AJ needs extra time to catch up. Summer school is only three days a week, three hours each day for four weeks. After that he will have all of August to enjoy summer camp. I’ll make sure I have fun activities planned on the weekends.

What are your kids doing this summer?

beach

I know I’m taking a big risk posting about this. There are people who will judge, tell me what I should have done differently, or just send negativity my way. I say go for it if it makes you happy. Their negative vibes will have no effect on me. I know AJ and I have love and support that outweighs any negativity. Besides, I own the domain, therefore this is my blog and I can post whatever I choose. I want to be honest and open with my readers, I want to share our struggles and joys.

Do your kid(s) receive support services? Was it a battle or did the distinct
provide services immediately?

Great resources


Comments

Finally On The Right Track — 22 Comments

  1. Karen, I am so glad that AJ is getting the services and help he needs. I truly can’t even imagine and will say it sounds like the pre-school dropped the ball a bit, but from all I know about you, I think you are doing only the best for him as you are an amazing mom. Hugs to you and thank you for sharing, as well as being so open and honest here, too.

    • Thanks babe! Yeah that school dropped the ball and even daycare knew it. I;m so glad he’s at a different school in the district. I am so relieved that he’s finally getting what he needs.

  2. Karen you are doing the correct things and who the hell cares what the other naysayers think. This POP POP wants the best for Anthony and YOU will get him to that level. I can see he loves to read and wants to be read to. He will grow up to be a fine young man because of his parents love.

  3. My oldest needed speech due to articulation issues but since it didnt impede his learning he was denied speech therapy via the district. He read at 3 but his speech was not clear it hampered his social skills. That was very frustrating. My youngest has articulation and phonological issues and has received speech since he was 3 at home then in his preschool program. Now he still recieves speech in the 1st grade. I think speech has helped along with age. His high energy and his behavior makes learning in the classroom a challenge. Fortunately we have a great teacher this year. Kudos Karen for your persistence. Great job!

    • That is frustrating and annoying. I see it all the time, well “he” is smart and is adjusting, so we’re not giving him any help. What an educational injustice. I am glad your youngest was able to get the services he needed, speech and reading is all connected especially in early intervention and an amazing teacher is always a HUGE plus.

  4. So glad that AJ is getting the help he needs. I can’t imagine all the frustration you’ve gone through with trying to get him the proper help. Sometimes people just need to trust a mother’s instinct, though!

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  6. You are doing what is best for your son – your persistence paid off. I’m sure AJ will have an amazing summer full of fun and learning!

  7. I think you are doing a great job! My child has an IEP and I am very pleased as to how they are handling his education and special services. With summer vacation coming up the response for therapy will be on us, which I admit I find daunting.

  8. It always makes me angry that parents have to fight so hard to get their children the services that they are entitled to under the law. I’m a teacher & my husband is a very special special education teacher (He teaches the kids who have been removed from a regular school or alternative school and are about to be institutionalized due to emotional and/or behavioral disorders) – and we find ourselves going to bat for friends…providing them with information, helping them form strategies to get the services their children are owed.

    I’m glad that things are finally on the right track…but you have to stay on top of them. It’s a never-ending process.

    Stopping by from Sharefest!

    • Thank you, I hear you. I am a reading specialist with a special education background. I have helped so many parents as well, but the town we live in would not help my son…disgusting right. Finally now in Kindergarten he has a great team who knows what he needs to succeed.

  9. Parents are supposed to be the child’s biggest advocate. I’m glad you are fighting alongside your son to overcome whatever challenges may come and that you found a supportive school system. Good job, mama!

  10. It’s definitely your blog and you can share whatever you want to on it. I’m a teacher in the UK and I know it can be such a struggle for parents to get the special needs support their child needs. It’s wonderful that you keep advocating for your son; no one else can like you do and very few will. So lovely that he has a mummy like you fighting his corner. Hope he fully gets all the support he needs to thrive in all the ways he can. 🙂 #aNoviceMumCommentLuv

    • Thanks babe! I will keep fighting for him. I was planning on requesting a reevaluation and getting an advocate…glad I didn’t have to.

  11. I’m so glad your son will be getting the services he needs. It makes me so angry though that he was denied them in preschool! My son has gotten great services from kindergarten and did in preschool as well so it makes me extra angry when a school is not as supportive as they need to be. Grrr. Good for you though for getting him the help he needs now!! xo

    • I know, I couldn’t believe they kept turning him down. I told his teacher I would keep fighting, ask for reevaluations, and get an advocate. I wonder if she relay the message or if they truly knew he needed help.

  12. Hi Karen! I’m sooo glad you are pushing for services for your son. I loved reading about the changes that are coming about because of your dedication! And I love that we finally could track back to your website. Yay! Thank you for stopping by! PJ had a diagnosis of Autism. The first comment made by district SLP was ” He doesn’t have Autism” . We know the struggle. I’m an experienced Early Education ADirector and Title 1 Resource Teacher. Seems we may have much in come:). Please keep in touch. ~ Crystal:) http://theafterschoolhouse.com/2016/04/08/arbor-day-exploration-musings-of-autism/

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